Friday, June 05, 2009

6 Week Post Op Appt. Report

Gavin loves to help take off his EKG leads, the tech is always impressed at how still he is and how helpful he is! (He is trying to put on that strong face, this doesn't hurt!)

Gavin had a good report from the cardiologist... still no fluid on the chest and his EKG looked great! They took Gavin off of his non-fat diet and discontinued his medical equipment (stay tune for pictures of the day they come to pick it all up). Gavin will have a heart cath in December to close up the fenestration hole. Gavin will have every 3 month check-ups with the cardiologist for the next year, if all continues to go well Gavin will have every 6 month check-ups for the rest of his life. Gavin will also have labs done every week until the cath to watch his INR levels for one of his meds.

During the appointment we discussed what will happen with Gavin's long term health. There were three main concerns that the cardiologist said to watch for in the coming years. Gavin only has the right side (two-chambers) of his heart which is doing all of the work for what should be a four chamber heart. Basically they watch to make sure the heart and certain valves don't start getting lazy. Of course if that happens then a heart transplant would be the next step. Secondly, watch for PLE, or protein-losing enteropathy, if you want to know all about it, google "PLE after Fontan procedure". Symptoms include diarrhea, stomach distention, swelling. Lastly if Gavin were to have any of the valves in his heart to start leaking they would surgically go in and repair them. We feel that Gavin is doing great now and we will continue to pray that none of these obstacles will come his way! They always try to prepare you for the worst. However, I found that when I worried about the "what-if's, could be's" when I was pregnant... I stressed for no reason because the majority of the complications did not happen with Gavin. On a good note, Gavin will be allowed to play T-Ball & Soccer next year, it's the high school & competitive age that he would physically not be able to play. Golf is always an option! We are completely fine with that and really we just want Gavin to do what makes him happy and keeps him healthy! We think he will just be our little book worm because he is already so smart! Maybe a heart surgeon in the works?? Cute story: yesterday he was telling the nurse what to do next, "listen to heart","blood pressure". He's not even three yet and he is telling the nurse how to do her job?!? The nurse had to prick his finger to get his INR levels for one of the anti-coagulants that he is on. He didn't even flinch or cry... then an hour into the drive home he woke up from his nap bawling "prick my finger, my finger!". So dramatic! Needless to say we are happy to be home and really move on with this new phase of life. I can't begin to tell you how happy and thankful we are, life is good and God is GREAT!
P.S. Say a prayer for Baby Cain (HRHS) and his family, he is having is Glenn repair today!


Alyson said...

YAY!!!!! I am so proud of Mr. Gavin!!!!

He's such an inspiration :0)



How have you been??

Tammy said...

Great News!

Staci said...

Such a good report! You will cross road bumps when they appear. Until then, enjoy Gavin as a happy and healthy 3 year old. Keep us posted.

Erika said...

Yay! What a great followup! He's getting so big and handsome - it's crazy to think about where we were 3 years ago, isn't it? I'm so grateful for our boys!

April said...

We are so happy that everything went so well :)

Anonymous said...


Lots of Love!
The Voss Family

Sonia Lopez said...

Hi, Faith. So glad you all and Gavin are finally starting this new phase of your life, and with such a great start (Gavin doing so well, #2 on the way, etc.)...
I would really like to bring some flan over to you guys, but I can't find your phone number and I think the email I have for you is an old one. Would you please send me an email or give me a call at 282-6547 or Love, sonia lopez

Drea said...

Gavin looks so good.

Is Gavin on Warfarin??? INR checks??

I am glad to see him looking so good.

Alison (Abby's Mom) said...

I am so envious that you are already on the other side of the Fontan. And I am so amazingly excited at how well he has done. You are so blessed!

-Alison (Abby's mom)

The Clinkscales Family said...

We had an appointment with the cardiologist today for a routine appointment (which went well) and while we were discussing Cain's next surgery the doctor mentioned after Cain's Fontan surgery they would have to go back in and close the fenestration hole. This was the first time this has been mentioned to us and I remembered Gavin recently had this done and you had mentioned it in an earlier post. I was reading this post again tonight and I saw at the end you had asked for prayers for Cain while he was having his Glenn. Just wanted to thank you again for doing that for us. It made my heart stop when I read it. I had forgotten all about you doing that and couldn't believe it was at the end of this post since I specifically went to look for this post about "fenestration hole" wanting to learn more. Hope Gavin is doing well and Merry Christmas to your family!