We are finally home! Adam didnt get to join us on the way home because Gavin was not discharged until after 6pm and Adam had a test, he had to head back to Broken Arrow before us. Gavin slept the entire way home. We stopped at our family friends house that we were staying with to gather our stuff, eat dinner, and tell them good bye. Gavin started out in his "take home outfit" but after our stop and him throwing up all over his outfit, he ended up in an outfit that his Aunt Erin and Uncle Jon gave him. (Thank you for that, otherwise I dont know what we would have put on him!) All of his clothes are extremely big on him because he is so small, so that is why his outfit looks huge on him! I cant believe we are actually home, it was a long 3 1/2 weeks, and we are definately glad it is over! It has been a wonderful experience having Gavin at home, he is such a miracle. I stare at him all day! We have had a hard time sleeping not because Gavin doesnt sleep (he is a VERY good sleeper), mainly because we are paranoid. He has a monitor that beeps at us if he stops breathing or his heart rate drops but I just cant find myself to fully rely on it. I know in the coming weeks it will get better and we will sleep better. Please continue to pray for Gavin as we are in the winter season and we do not want him to get RSV or any other illness. Home health care will come in every month to give him his RSV shot, replace oxygen tanks and check on Gavin. We will be taking him to the peditrician tomorrow and to the cardiologist next week, so we pray that he stays healthy as we take him out. Thank you again for your continued support and prayers. We will continue to update everyone on this website as Gavin has his other surgeries and as he grows! We love you all!
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